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I will ask the members to please take their seats.
I'm Joy Smith, the chair of the committee. I want to welcome you back to committee. I am so pleased you were able to make it back, as the last time you were here, the bells rang, which happens from time to time.
As you know, pursuant to standing order 108(2), we are continuing our study of chronic diseases related to aging. We have Lynn Cooper from the Canadian Pain Coalition. We do remember your excellent presentation, Ms. Cooper. Thank you.
And we have, from the Canadian Coalition for Seniors' Mental Health, Kimberly Wilson. Of course, Kimberly, you were also here.
We also heard from Associated Medical Services Inc., from Mr. Jeffrey Turnbull, a member of the board of directors. We so appreciated your presentation.
We're going to to go where we left off, at our last presentation, by the Fédération interprofessionnelle de la santé du Québec.
Excuse me, Dr. Carrie?
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It's the same way we usually do it in the health committee. There are no changes.
Those are good questions.
Are we all set to go now? Are there any other questions? All right, I think we can go now.
We'll have our presentation from the Fédération interprofessionnelle de la santé du Québec. We have Madame Régine Laurent, the president. I've asked the clerk to help correct my French pronunciation. What a beautiful name. You will be presenting.
With her is Madame Lucie Mercier, the labour advisor.
You can proceed with a 10-minute presentation.
:
Thank you, Madam Chair.
Good afternoon, honourable members.
The Fédération interprofessionnelle de la santé du Québec represents over 60,000 members, including nurses, nursing assistants and respiratory therapists working across Quebec. By virtue of our professions, we are concerned about health and diseases, chronic diseases in this case.
For us, the aging of the population, although real, is not the destiny that the advocates of the apocalypse would want us to believe it is. Only an increase of 1% in the costs of healthcare services is associated with the aging of the population. The effect of age and the effect of death should not be confused in the costs of healthcare services. Furthermore, we have to remember that the financial situation of the elderly is not necessarily an enviable one. And that is especially true when it comes to the poverty of elderly women.
In terms of chronic diseases, we have mainly relied on the definition of the Health and Welfare Commissioner, who says that chronic diseases include a great number of conditions: cancer, diabetes, disorders of the musculoskeletal system, and so on. It is therefore not surprising that they drain a lot of resources from the healthcare system. In fact, 5% of the population uses nearly 50% of the short-term care.
Moreover, we are well aware that you want to hear us talk about chronic diseases in the elderly. But with a broader view of health, we also look at data for people age 12 and over who suffer from chronic diseases. We are talking about 52.6% of people in Quebec. So chronic diseases are not just exclusive to the elderly. Unfortunately, they can affect all ages.
Different types of services are required by people with chronic diseases. Some are important to us: screening, diagnostic, treatment, support, rehabilitation, and also palliative care. Our organization appeared before a parliamentary committee in Quebec a few weeks ago. We believe palliative care is highly lacking.
Healthcare institutions are not always the best choice when the time comes to treat a person with a chronic disease. The literature is full of integrated models for the management of people with chronic diseases. Among others, there is the Chronic Care Model, a clinical model retained by the Health and Welfare Commissioner and the expanded model for the management of chronic diseases, which integrates aspects of prevention, community and population in order to have a greater impact on the determinants of health.
In terms of community development and clinical models, there is the SIPA model. This clinical model, which we also use, is built on case management, meaning that all services have clinical responsibility.
When we talk about chronic diseases, we also have to think about home care. Home care should be considered as medically required in the Canada Health Act and consequently, it should be covered by the public healthcare systems. The income level of people with chronic diseases, whatever their age, must be avoided at all cost in determining the care to which they will have access. This principle, which is the basis for the Canadian healthcare system, is still a consensus across Canada. Unfortunately, home care currently represents a small proportion of the healthcare expenses in Quebec and in Canada. We would very much want to see it go up.
We are also concerned about access to medications. In many cases, pharmacological treatments with the proper follow-up can replace hospitalizations. That is why it is of utmost importance that drugs be available at reasonable costs. We are concerned about the negotiations in progress to conclude the Comprehensive Economic and Trade Agreement between Canada and the European Union, more specifically the clauses on protection of intellectual property. That is very likely to result in an increase in the costs of medications, which are already very high. Let me take you back to the beginning of my presentation where I mentioned the poverty of elderly people. So they are being further penalized.
We think that palliative care, meaning end-of-life care, must also be included in the basket of insured services and not be the subject of disengagement of the state as is the case currently, where beds that were reserved are now closed and where the community must raise funds to finance palliative care hospices.
The last point I would like to make has to do with informal caregivers. It is undeniable that informal caregivers, generally women, greatly contribute to the well-being of people with chronic diseases. Furthermore, according to the Health and Welfare Commissioner, 25% of informal caregivers have been diagnosed with depression. But we have ways to support informal caregivers so that, if they want, they can continue taking care of their loved ones. They should benefit from conditions facilitating their care of those with a loss of autonomy. That is why we are putting forward the concept of compassion benefits.
We know full well that, in Quebec, health falls under provincial jurisdiction. We wanted to join you today because we are concerned about what is going to happen after 2014, given that the health agreement is surely being discussed again with the provinces. This is an important part for us. As I was telling you, all federation members work with people on prevention—and they would like to do more of it—but they also work with the elderly affected by chronic diseases.
Thank you.
Have I gone over my time limit, Madam Chair?
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I am going to answer your question about medications, and then, my colleague, who has really gone through the entire agreement, can give you an answer.
Here is our concern about medications. As soon as people are no longer in hospitals, as soon as they are at home in the community, they have to pay for medication. Unfortunately, given the poverty rate, especially among women, we see on a regular basis in our profession elderly people who are choosing between eating properly and buying medications.
As health professionals, we feel this is all linked. People should be able to eat well and should not have to choose between healthy food and medication. We are very concerned about this because we think that someone who does not eat properly will have other health problems at some stage. It is really about the big picture.
I was talking about clinical models. I think they might be useful for us because we deal with prevention. This includes all services, not just nutrition. We have to make sure that those people exercise, that their mental health is satisfactory and that they have the means to buy medications.
:
Thanks for your question.
The data we have, sometimes we don't think is necessarily as accurate as we'd like it to be. A lot of the ways mental illness manifests in older adults aren't necessarily captured by some of the tools that we have. If you take depression, for example, some of our data show that in community dwellings samples the rates are similar across all ages, at 12% to 15%. We also think there are probably a lot of older adults who aren't being captured properly in those statistics.
However, if you look within long-term care, the numbers for depression go up significantly, with up to almost half of all residents in long-term care showing some symptoms of depression. Some surveys have shown between 80% to 90%.
I think probably what's most important know is that the numbers don't change as people age. In fact, we see an increase. If we're saying one in five Canadians lives with a mental illness, that would also be true for older adults with certain segments being at higher risk.
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I think this is an area where we have a lot of opportunities to strengthen what we are already doing. There are certainly people who are champions across the country in local communities who do excellent work, but I don't think we're doing it well enough yet.
I think it's really important, too, to think about the two separate cohorts that we talk about: our current cohort of older adults who really grew up with a lot more of the stigma associated with mental illness than perhaps our next cohort may experience; and then the baby boomers, a very different generation, the one that we often talk about when we talk about this boom or tsunami that might be coming.
I think there are opportunities in the curriculum. Right now we know that medical students, for example, receive very little information about mental illness in general, and mental illness in late life in particular. Right now we don't have a lot of mechanisms to reach people who are currently in practice and to introduce them to some of the newer assessment tools, some of the risk factors, and the opportunities for treatment in late life.
:
Thank you, Madam Chair.
First of all, you will have to forgive me. is the regular member of the committee for the Liberals. I am standing in because she's not in town today. I didn't have the benefit of any of your presentations, except the ones that were made today. I come at this, on more than one level, from a position of ignorance. My apologies in advance.
The committee I normally sit on is veterans affairs. I was somewhat pleased in hearing your presentation, Madame Laurent and Madame Mercier. There is a bit of an overlap. What I want to ask you about ties into this, given what you've had to say about palliative care and the concerns of the nursing profession in caring for the aged. You are probably aware that in the province of Quebec right now, there are extensive negotiations under way for the transfer of the Sainte-Anne-de-Bellevue Hospital from the federal to the provincial government. I would be most interested in your perspectives and your organization's perspectives on what both sides should be considering in those negotiations, and your views on the potential impact on your profession, on health care in your province, and on the patients.
I want to begin by saying that we are not involved in the negotiations. Therefore, I will give you my point of view based on the information we have. That information came from government officials.
We share the concerns of our colleagues from Sainte-Anne-de-Bellevue: specific clients need specific care. For instance, earlier, I was talking about seniors with specific needs. So, we think that in order to take care of veterans, certain particularities must also be taken into account.
I saw our colleagues were asking that their current organization of health care be taken into account, and I agree with that. They say—and I believe them—that their organization is appropriate for patients with specific needs. They are worried that the way their health care is organized will change once they merge with the Centre de santé et de services sociaux de l'Ouest-de-l'Île, and I am also worried about that. That is why they asked that a separate board of directors be maintained for Ste. Anne's Hospital.
To my knowledge, the Government of Quebec has not consented to their request for a separate board of directors. However, we will give them all the support we can so that the current health-care structure, which meets veterans' needs, stays in place. We don't believe that being part of a health-care and social services centre means that everything should always be standardized, be it for veterans or other clients.
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I fully understand your concerns, and I share them. As far as I understand, unless the pressures are strong enough, they are asking for a separate board of directors for Ste. Anne's Hospital. I think that would be the best way to guarantee that the organization of health care remains unchanged.
However, it seems that the Government of Quebec wants to stick to its vision by not authorizing a separate board of directors. However, I think they can rely on us. We are ready to help and support them in achieving their goal.
You are right, there are other institutions in Quebec that do not operate like the others. One example from the other extreme is Shriners Hospital. It operates in a different way. I think that different client bases must be handled differently.
We will support them in their fight to keep the current health-care structure. As for the separate board of directors, I don't think the Government of Quebec will allow it.
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There are several important initiatives we could look at internationally, in particular in Scandinavia. We have to understand that the issue we're facing is that of building a chronic disease management system around our acute care facilities. We have a very good acute care system, but we haven't built or accommodated an aging population that has chronic diseases. So we have to build the system around this.
Other jurisdictions, in Scandinavia and elsewhere, have been able to respond to that challenge. They provide services, as we've heard, using different approaches, such as team-based care outside of the hospital, including home-based care. They are moving care out into the community, with a patient-centred focus, so that you're not using the hospital. For example, there are health care units within community centres, in a nursing home, or a long-term care facility, all providing a centre of care within those facilities as opposed to having to use hospitals as the default for a failing chronic disease management system. So there are many opportunities for us to work differently.
But I have to say that this is a wholesale change in the way we practise medicine. Our ability to adapt will depict and predict how successful health care will be in the future. Our current model, no matter how we try to massage or adjust it, will never be able to accommodate the demands of an aging chronic disease management system. So we need to think of making substantive changes, not modest ones.
On your last point as to the role the federal government could play, I think it could play an enormous and very helpful role in looking at a long-term, home-based care strategy right across this country. You could use elements of the transfer payments system to facilitate change, change that we know is dramatically needed, through some form of an innovation fund. That change would spur a new generation of health services delivery and provide the necessary care for our seniors.
:
Thank you for your question.
It's a fact that women have been paid less than men throughout their lives, at least so far. They earn 70%—75% at best—of what men earn. Therefore, their income is lower once they retire. At the same time, they live longer, and they are the ones providing informal care.
We are well aware that poverty is a risk factor. At least, that's how we see it. For women, the risk of chronic disease goes up. At the same time, women in difficult financial and family situations do not have the tools to get out of those situations. Personally, I'm pretty sure that being an older woman with a chronic disease is not something to wish for.
:
Thank you very much. I'll be as brief as I can.
Health professionals have an essential and fundamental role in promoting healthy lifestyles, especially among seniors, where they can have an enormous benefit in preventing falls and in promoting better nutrition, healthier bones, etc. So health professionals can play an essential role.
However, I would also have to say that we must create structures permitting health professionals and our elderly population to enjoy a very healthy lifestyle. We've heard about the poor, so we have to ensure that the poor have adequate access to a reasonable diet. We've heard of the need to have appropriate facilities in education, and so we need to have systems to communicate with the elderly, and to promote their better health.
There are lots of structural things that we have to do. But yes, health professionals of all stripes have to play an essential role in promoting the health of our elderly population.
My story is really quite typical. I was injured 25 years ago, and I dealt with the health care system in my province of Ontario, which was not prepared to support me or my health care professionals with the necessary acute care management, which might have prevented the situation from going chronic—but definitely not in the treatment of the chronic pain.
Twenty-five years later we have made some inroads, but not very many. We know that the gold standard, if you will, for the management of chronic pain is multi-disciplinary, which means that you would possibly have medications with the involvement of your physician and/or have a physiotherapist, an occupational therapist, or someone who can help you learn to live with your pain—perhaps a psychologist using cognitive behavioural therapy.
Along with that intervention from the medical system, we have to involve the individuals who have the pain problem and get them very active in their pain care. We can no longer be passive.
Part of the problem is that most Canadians don't understand the difference between acute pain and chronic pain. Acute pain is the temporary pain that lets us know there's a problem and that we might have to seek medical assistance. Chronic pain serves absolutely no purpose to the body at all. This is what creates the suffering.
We need to involve everyone in this model. It is about the lifestyle changes I was able to make, including exercise, diet, and rethinking what my life was like with pain and how I was going to keep it productive. I found the Canadian Pain Coalition, which is an amazing organization that from the very beginning has fought to bring in the people with the problem, to bring a voice to the pain. And if you look at me now, you wouldn't know I'm sitting here in pain. If I had to give my pain level on a scale between zero and ten, or the worst pain I've ever had, I would tell you that I'm at a seven right now because of the travelling I've done.
What the coalition has done with the Canadian Pain Society is to create a national pain strategy for Canada. We will have that finalized at the beginning of January. We are going to launch that national pain strategy at a Canadian pain summit here at the Chateau Laurier down the street on April 24, 2012.
The idea behind the national strategy is that it's a policy document meant to inform all provinces about the changes necessary within the health care system to support our health care providers and people with pain. We're looking for all Canadians to endorse this as of the beginning of January.
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Thank you, and I want to thank my colleagues for giving me an opportunity to follow up with some questions.
I'm going to direct them to Ms. Cooper. I want to follow up on your observations from your own experience over the last 25 years. The federal government has, I believe, played a leadership role in working with the provinces and territories in promoting and supporting our health care system and innovation within the system. In fact, the Canadian Institutes of Health Research made pain, disability, and chronic diseases a strategic research priority following consultations with stakeholders. They have provided more than $96.7 million in funding for research on pain, including chronic pain, since 2000.
You mentioned that you will be launching a national strategy in April 2012 and that it will involve all provinces. In developing this national strategy, have you come across any best practices in the provinces that would feed into what your strategy on chronic pain is going to be?
:
Thank you very much, Madam Chair.
I would like to thank the witnesses very much for their informative and important testimony today. I'm very confident that it will help us to move forward in a significant and meaningful way. I'm also glad to hear you say that there's an important federal role in all of this, because we tend to say, "Oh well, health care is provincial". I too believe that there is a leadership role for parliamentarians, at this level of government, to play.
I'm the seniors critic for the NDP and we've been looking at the economic security of seniors. The last stats that we managed to gather say that 250,000 seniors live below the poverty line, and that least 154,000 of them are senior women. I'm very afraid that those numbers are escalating. In terms of that statistic and in terms of supporting seniors and making sure they're safe, we're asking questions about affordable, supportive housing and the lack thereof. Seniors are pushed out of their homes. There are not enough appropriate long-term care facilities, and they're very expensive. And there's a real dilemma.
Would you support—in addition to the information that you've provided in so many other areas—a national housing strategy that looked at the needs of those in our community who simply don't have appropriate housing?
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Thank you, Madam Chair.
Several organizations in Quebec—including our own—are campaigning for the building of public housing. We would like to have public housing that is better suited to seniors' needs. In other words, seniors would be provided with minimum care. That housing would have to be able to provide support to elderly people on a daily basis. We are campaigning for that type of housing.
I think that investment would quickly pay off because this initiative is a lot less expensive than keeping seniors in institutions. They would at least be at home in this type of housing.
I want to build on what Ms. Laurent said. She talked about mental health so eloquently. Living in communities and not being isolated does wonders for people's mental health. They are still part of society and don't feel like they've been cooped up somewhere.
I think that campaigning for public housing is a wonderful idea. Some people even make meals together in similar housing projects elsewhere. There are various ways seniors can socialize in such environments. This helps them maintain a very high quality of life and is not expensive for the health-care system.
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For instance, nurses could be brought closer to communities. We know that every community has a community centre. Why not provide follow-up to seniors through community centres?
We know that establishing this trust is important. We know that because, as professionals, we deal with chronic diseases within health care institutions. Why not have systematic follow-up in communities? That would be one way to prevent chronic diseases.
By following the person, we can ensure that they're taking their blood pressure medication and beta blockers properly. The INR for people taking Coumadin must be checked. Therefore, it is a matter of prevention. It enables people, even seniors, to take charge of their health, because they can. When we take the time to teach and follow up....